Progression...

"Guess what daddy? I pooped a big poop on my own"

I went home on Saturday to collect up the other two kids, let them sleep in their own beds for a couple of nights, and perform some errands (well, I didn't collect them up so much as they were delivered, thanks guys). I received the above text and pic from Christine today, who stayed behind an extra day for Rory. She'll be home Sunday night, then return to Rady Children's and RMH with the kids on Monday.

So that's huge news! She pooped, a big poop, all on her own, without the dilation. This is very promising progress. Very good news at a time when we needed some good news. I've been reading up on those two issues, mostly medical journals and abstracts where the doctors refuse to use common English, probably in an attempt to fool the reader into believing that the authors know what they're talking about (I do the same thing, but don't tell my clients). You have to constantly reference a medical dictionary just to keep up, but it's manageable once you've spent 7 or 8 hours doing so. Those two issues, IASA and Lymphocytic Ganglionitis are not good news, not even close. The latter gives me more concern than the former, probably because there's not much information out there, the information that is available seems to call it by many different names, and there are some grim case studies.

Tomorrow Rory will have some blood work done in an effort to confirm the Lymphocytic Ganglionitis finding by the pathologist. I'm hopeful that the pathologist was high, and in a rush to get out of the lab because he was already late to a Nirvana-tribute concert. But the blood work means Rory won't feed for 12 hours before the test. Her unusually happy demeanor is sure to change tonight.